REVIEW

Global and national bone marrow registries: experience of using, main issues, and perspectives

Eichler OV1, Miroliubov AA2, Nechaev DN2, Titova AG2, Trusov GA2, Garbuz VV2, Lomov AN2, Yudin VS2, Keskinov AA2, Kraevoy SA2
About authors

1 Federal Medical Biological Agency, Moscow, Russia

2 Centre for Strategic Planning and Management of Biomedical Health Risks of the Federal Medical Biological Agency, Moscow, Russia

Correspondence should be addressed: Alexander A. Miroliubov
Pogodinskaya, 10, st. 1, Moscow, 119121, Russia; ur.abmfpsc@vobuiloriMA

About paper

Author contribution: Eichler OV — developing the concept, manuscript writing; Miroliubov AA — analysis of foreign information field on the subject of the article, writing sections about specific procedures of the register functioning under conditions of nuclear threat, methods to search for initial financing resources for the US national registry; Nechaev DN — analysis and synthesis of the quantitative registry performance indicators, estimating the opinions of foreign authors about the issues related to the bone marrow and hematopoietic stem cell biobanking; Titova AG — acquisition and assessment of quantitative data about the foreign registry performance; Trusov GA — estimation of the provided data integrity, assistance in developing the manuscript writing method; Garbuz VV — analysis of the building principles and performance of specific procedures of foreign bone marrow donor registry functioning; Lomov AN — analysis of methods and technologies for informatization of the foreign registries of bone marrow donors; Yudin VS — manuscript editing; Keskinov AA — developing materials on the bioinformatics methods used for genotyping of donors from foreign registries, manuscript editing; Kraevoy SA — developing materials on the organizational and legal aspects of functioning of the foreign registries of bone marrow and stem cell donors.

Received: 2023-12-18 Accepted: 2024-03-05 Published online: 2024-03-28
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